The Ontario Brain Injury Association has developed a New Provincial survey to gather data on the status of people living with a Brain Injury. This survey replaces the CISL survey that OBIA used for 15 years and which many survivors and family members completed annually. The development of the new survey was funded by the Ontario Neurotrauma Foundation, which hosted a two-day Think Tank comprised of representatives of survivors, caregivers, researchers, insurers, and the Ministry of Health. After it was determined what kind of data would likely be useful to researchers, funders, and policy makers, a professional survey writer from the University of Toronto was hired to create both an Adult version and a Child and Youth version. Both versions include a piece that will reflect the effect of the Brain Injury on Caregivers. Several drafts were run by the participants in the Think Tank, and then 30 of each form were piloted with both former respondents and new respondents along with a Feedback sheet. The result is that we now have a survey that I think will effectively gather information on the effects of Brain Injury over the life span which will be of use to researchers, funders, and policymakers. Of course all information is kept in the strictest confidence and each year statistical reports will be published.
This survey is available via the OBIA website or by calling the OBIA office at 905 641-8877 or toll free at 1-800-263-5404.
Please note: You may also call the BIALR office at 519 642-4539 and we will be pleased to send out a Survey Release of Information form to you. We ask that you then return the signed form to our office, and we will forward to the OBIA office. The OBIA support staff will contact you regarding completing the survey over the phone and/or send you a copy of the survey for completion.
For people living with Acquired Brain Injury
The Ontario Brain Injury Association and participating community brain injury associations have formally linked their organizations to become the Community Support Network.
CSN’s main purposes are to provide a stronger voice for people living with acquired brain injury and to develop and produce province-wide programs. To date, those programs include: Peer Support Mentoring Program for People Living With ABI; ABI Directory of Services; Biennial Provincial Conference (October 2009); Dual Membership.
All of these initiatives are developed by committees of the OBIA Advisory Council, which is made up of representatives from regional brain injury associations and OBIA